An Update...

The update is that we have unanswered questions...

Jada is happy and healthy to the casual observer. BUT some things have us worried. Her EBV numbers are staying the same. The Epstein Bar Virus (EBV) is what can lead to a terrible cancer called PTLD. We REALLY REALLY REALLY want that number to go down. Jada gets a immune inhibitor twice a day called Prograf. Catch 22 is that the prograf causes the EBV to live without consequence in her body, so we lower the Prograf to hopefully lower the EBV. Scary thing about doing this as her prograf drops her body becomes more and more susceptible to rejection. This puts us in kind of a balancing act.

In this balancing act we try and keep an eye out for signs of rejection. We are supposed to get labs drawn every week. However on Monday she was late for her prograf dosage and we had to get her back into a readable dosing schedule. One thing we are very concerned with is her large tummy. Last week Dr. Book said that Jada's spleen does look enlarged and that heightens our concern a bit. Andrea and I have noticed in the last couple days that her tummy is getting even bigger. Hmmmm... She does not have any rashes or fevers, and her poop still has color. All of which can be signs for rejection. Yet we still worry. Jada will be going in for Labs tomorrow and we will find out then what her liver numbers look like.

I need to get the video camera rolling soon because she is doing some pretty cute things. Her favorite movie right now is Superman Returns. This is a welcome break from the usual animated movies. Jada has a superman cape that she puts on and pretends she is flying all over the house. She knows who the "Bad Man" is (Lex Luther). And is pretty impressed with Superman's short "H o s i p i t o l" stay.

Throughout the day Jada asks if it is time to go to Disneyland? We tell her "one more month!" to which she replies "I'm essited to go Disneyland!". Andrea is working A LOT with her real estate. And I am continuing to work two jobs. Grandma Dawny is saving our collective anus's with her babysitting! Hopefully tomorrow I will have some good news. Jada's cousins are currently in Lake Powell :( WE WISH SO FREAKING BAD JADA COULD DO THAT! Oh well, its life. We know they are having fun and pray for their safe return.