Basically the most disturbing thing about EBV is that it can turn into (cause) a nasty cancer called PTLD. Look up PTLD online if you want to get depressed 58% of kids who get it don't live. The crappy thing is its difficult to detect. They will watch her labs closely. One sign of the "looming danger" of PTLD is the EBV count. Now from what I have read with other cases of transplant patients, this is the scale that seems to fit. This scale is in no way official but rather the pulse I get from others when their kids are being monitored with EBV.
EBV value = PTLD Danger
50-400 = Kind of scary but constant monitoring is needed
400-1000 = High alert
1000-4000 = Scary High Alert
4000-6000 = Dark Clouds are on the horizon
6000-20,000 PTLD is next to eminent
Jada Rose is at 6000
I put 20,000 out there because the Liver Clinic said they have kids who reach this level and that is when it gets stormy. Now as I stated above PTLD is diagnosed not by the EBV value but by testing separate strains of white blood cells.
So for The Plan:
We are administering anti-viral meds and taking her immunosuppresant way down. Hoping that her body will fight the EBV. Remember that for the sake of her liver, fighting is not a good thing. We don't want it to get attacked in this war we are in effect starting.
In two weeks the plan is to re-test her EBV level. From there if it is down, then we can breath a little bit easier and monitor the EBV for the rest of her life. If it is up...well lets just not talk about that right now ok?
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